• Anti-suffocation/ SUDEP prevention pillow
• Having extra doses of AEDs on your person when you are out
• Medical ID bracket or necklace
• Have water with you or access to water at all times
• Have a first kit in your home and a smaller first aid kit in your everyday
  bag
• Always have a snack in your bag
• When you are going to an event i.e concert, musical, comic convention ete be sure to check they have medical help in the building and if so where
• In hot weather keep a small spray bottle of water in your bag to spray on yourself to stay cool
• Make a after care kit with things that make you feel safe after a seizure to keep in your everyday bag if you go out your house

Things to do post-seizure

• Rest for as long as you need to whether that's minutes,hours days or weeks!
• If you have been in a state of status epilepticus, you or someone you know needs to contact a health care professional for rescue medication
• If you feel that your post-seizure symptoms will interfere with school or work then consider getting a sick note from your doctor
• If you have bitten your lip or tongue during a seizure, there are ointments and gels available for healing
• Talk to someone about any anxiety or worries you have about repeat seizures it is important to have support

Top 5 tips to remember to take your medication 

• Use a pill box
•  Set alarms morning and night
  
• Use medication reminder apps
• Keep medication visible to remind you to take it
• Keep extra doses with you in case you are out of the house

*If you do forget to take your medication contact your gp*

Socialising

Epilepsy can have an affect on social cognition this means that it can be difficult for the individual to predict or understand their own behaviour or the that of others in a social context for example: be unaware of social cues, sometimes have a lack of emotional understanding, become unpredictable in conversation (loss of speech, become confused, lose control, become distracted, seem as though they arent listening.) Brain fog is also a response and symptom of epilepsy which includes: finding it hard to put thoughts into words, poor memory, hard to comprehend conversation or words, hard to focus, hazy thoughts. Taking all this into consideration aswell as the unpredictable nature of seizures and further symptoms of epilepsy a person with epilepsy may need to: Suddenly cancel plans, need to take a rest from conversation, not participate or leave early from events. If you need to do these things in a social setting then remember your health comes first, you come first and those who love and care for you should not make you feel bad about needing to this for yourself.

Epilepsy advocacy